Since most children’s hospitals only encounter one or two cases per year, it is important that children with this rare disease receive medical care from an experienced team. Our team of experts include pediatric endocrinologists, surgeons, radiologists, pathologists, anesthesiologists, advanced practice nurses, nurses, social workers, researchers, speech and feeding therapists, and dieticians — all working together to provide specialized, patient-centered and seamless care for children with congenital HI and their families.

The center has performed more than 350 18F-DOPA PET scans for appropriate cases, by far the most of any center in the world. This innovative imaging technique helps surgeons pinpoint and excise focal lesions, sparing healthy parts of the pancreas, thus significantly reducing the risk of diabetes and potentially curing the disease.